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As a therapist, I understand why people want to locate themselves firmly on one side or the other. But my own relationship with this subject is less certain. Perhaps that is because I first encountered MND not through professional literature or public debate, but through my mother. I was fourteen when she became ill, and MND was part of our family life for around five years. I was a child experiencing something that I could not possibly have had the language to understand

When we've lived with it for years, we stop recognising it as anxiety at all.

It was a quiet, almost imperceptible shift in who I was. In fact, other people noticed it before I did, and that was perhaps the most unsettling part of all.